<?xml version="1.0" encoding="UTF-8"?><rss xmlns:dc="http://purl.org/dc/elements/1.1/" xmlns:content="http://purl.org/rss/1.0/modules/content/" xmlns:atom="http://www.w3.org/2005/Atom" version="2.0"><channel><title><![CDATA[The things that keep me going as a person with #MECFS: my partner, my adult kids, finding community online, and doing art.]]></title><description><![CDATA[<p>The things that keep me going as a person with <a href="https://mastodon.online/tags/MECFS" rel="tag">#<span>MECFS</span></a>: my partner, my adult kids, finding community online, and doing art. My world used to include a career I loved, hiking and walking in nature, being on the board of an arts organization, traveling, doing things with my daughters—and I am still grieving the loss of those. Grateful to have started art journaling because it means I can still have access to making art even when I can’t get out of bed. <a href="https://mastodon.online/tags/MECFSAwarenessDay" rel="tag">#<span>MECFSAwarenessDay</span></a> <a href="https://mastodon.online/tags/MillionsMissing" rel="tag">#<span>MillionsMissing</span></a> <span><a href="https://a.gup.pe/u/mecfs">@<span>mecfs</span></a></span></p>]]></description><link>https://forum.fedi.dk/topic/fab692e8-72ee-48d4-bca2-a2e63d1b8dba/the-things-that-keep-me-going-as-a-person-with-mecfs-my-partner-my-adult-kids-finding-community-online-and-doing-art.</link><generator>RSS for Node</generator><lastBuildDate>Mon, 15 Jun 2026 11:58:28 GMT</lastBuildDate><atom:link href="https://forum.fedi.dk/topic/fab692e8-72ee-48d4-bca2-a2e63d1b8dba.rss" rel="self" type="application/rss+xml"/><pubDate>Mon, 12 May 2025 18:29:59 GMT</pubDate><ttl>60</ttl></channel></rss>