I am just speechless.
-
I am just speechless. The Orwellian wording of a ‘minimum wait’ of 2 years before the real clock even begins to even start ticking of getting a diagnosis for #Autism and #ADHD is just spite.
It’s wrecking kid’s lives. Waiting lists have existed for years, but this is a period of being locked out before you are even on the waiting list.
-
I am just speechless. The Orwellian wording of a ‘minimum wait’ of 2 years before the real clock even begins to even start ticking of getting a diagnosis for #Autism and #ADHD is just spite.
It’s wrecking kid’s lives. Waiting lists have existed for years, but this is a period of being locked out before you are even on the waiting list.
Diagnosis is a chance to understand yourself, get support and live a more authentic life. Without it, I fear that many will show up in #NHS statistics in other far more sinister ways.
As a parent who is currently in limbo with one of my kids and told the school does acknowledge kids who are awaiting a diagnosis, but their support amounts to ‘here is some blu tac’,I just feel more angry than I thought it was possible to feel during all the years I’ve been on this journey with my family.
-
I am just speechless. The Orwellian wording of a ‘minimum wait’ of 2 years before the real clock even begins to even start ticking of getting a diagnosis for #Autism and #ADHD is just spite.
It’s wrecking kid’s lives. Waiting lists have existed for years, but this is a period of being locked out before you are even on the waiting list.
@JugglingWithEggs it's what NHS England has done to trans people for about 700 years.
-
I am just speechless. The Orwellian wording of a ‘minimum wait’ of 2 years before the real clock even begins to even start ticking of getting a diagnosis for #Autism and #ADHD is just spite.
It’s wrecking kid’s lives. Waiting lists have existed for years, but this is a period of being locked out before you are even on the waiting list.
Two years before they start? My eldest (now in his 20s) was on a 5 year (and rising waiting list) and my youngest (now an adult) was thrown off it twice, such was the length. We are fortunate enough that we could afford to go private for assessments in the end.
What they’re basically saying is that anyone over the age of 10 will not receive a diagnosis as a child.As an aside, after my eldest was assessed , the assessor said something along the lines of “How did you get this far without medication?”and he’s now on strong medication without which he’s somewhat, shall we say, erratic.
-
Two years before they start? My eldest (now in his 20s) was on a 5 year (and rising waiting list) and my youngest (now an adult) was thrown off it twice, such was the length. We are fortunate enough that we could afford to go private for assessments in the end.
What they’re basically saying is that anyone over the age of 10 will not receive a diagnosis as a child.As an aside, after my eldest was assessed , the assessor said something along the lines of “How did you get this far without medication?”and he’s now on strong medication without which he’s somewhat, shall we say, erratic.
I agree with your take on what this will mean for 10 year olds - and many of those will be girls. I have one who waited 5 years for a diagnosis - finally assessed under Right to Choose. The other has already waited a year, been removed recently from one Right to Choose waiting list because the list went from months to suddenly years. Submitted new paperwork this week for another Right to Choose provider on GP’s advice…now very worried it will just sit there unprocessed.
-
Diagnosis is a chance to understand yourself, get support and live a more authentic life. Without it, I fear that many will show up in #NHS statistics in other far more sinister ways.
As a parent who is currently in limbo with one of my kids and told the school does acknowledge kids who are awaiting a diagnosis, but their support amounts to ‘here is some blu tac’,I just feel more angry than I thought it was possible to feel during all the years I’ve been on this journey with my family.
While there is a large section of the media and consequently public opinion that seems to currently think #neurodivergence is some new made up trend that didn’t used to exist, researchers at Cambridge believe 50% of those arrested in London have undiagnosed #ADHD…
It’s not a fun, quirky thing to be labelled with. It has real devastating consequences if left untreated.
-
I agree with your take on what this will mean for 10 year olds - and many of those will be girls. I have one who waited 5 years for a diagnosis - finally assessed under Right to Choose. The other has already waited a year, been removed recently from one Right to Choose waiting list because the list went from months to suddenly years. Submitted new paperwork this week for another Right to Choose provider on GP’s advice…now very worried it will just sit there unprocessed.
@JugglingWithEggs I wish you and your family all the very best in progressing things a we chases with the youngest or, as you say it’ll probably just sit there.
It’s an absolute shitshow at present and I just think the know-it-alls should wind their necks in. It’s difficult enough without them stiring the pot and adding reasons for politicians and the media to attack. -
I am just speechless. The Orwellian wording of a ‘minimum wait’ of 2 years before the real clock even begins to even start ticking of getting a diagnosis for #Autism and #ADHD is just spite.
It’s wrecking kid’s lives. Waiting lists have existed for years, but this is a period of being locked out before you are even on the waiting list.
@JugglingWithEggs ffs. In the case of adults, they often already think and research for a long time before they even ask for a referral. I started wondering if I was autistic in 2021 and still haven't convinced myself enough to present myself to a GP.
And there was that poor woman in the news recently who took her own life because she was waiting for an ADHD assessment so long.
-
J jwcph@helvede.net shared this topic
