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  3. What's that you say?

What's that you say?

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  • dramypsyd@ohai.socialD dramypsyd@ohai.social

    What's that you say? A UK study aimed at proving that ADHD and autism are over-diagnosed actually found that we are still under-diagnosing both, and lack access to assessments remains a huge barrier to support? What a shocking and unexpected conclusion!

    https://www.politicsuk.com/p/fonagy-review-rejects-blanket-overdiagnosis

    foolishowl@social.coopF This user is from outside of this forum
    foolishowl@social.coopF This user is from outside of this forum
    foolishowl@social.coop
    wrote sidst redigeret af
    #5

    @dramypsyd They just can't seem to see diversity in all its forms as anything but a problem to eliminate in the name of efficiency.

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    • dramypsyd@ohai.socialD dramypsyd@ohai.social

      What's that you say? A UK study aimed at proving that ADHD and autism are over-diagnosed actually found that we are still under-diagnosing both, and lack access to assessments remains a huge barrier to support? What a shocking and unexpected conclusion!

      https://www.politicsuk.com/p/fonagy-review-rejects-blanket-overdiagnosis

      badgardener@mountains.socialB This user is from outside of this forum
      badgardener@mountains.socialB This user is from outside of this forum
      badgardener@mountains.social
      wrote sidst redigeret af
      #6

      @dramypsyd

      As ever, Streeting got hold of a genuine issue and conflated it without understanding or nuance:

      1) Neuro divergence is under-diagnosed in the UK, because nobody without serious money can access NHS assessment in a timeframe where it would remotely help.

      2) As the report acknowledges, independent (ie paid-for) assessment varies wildly in quality, and essentially any parent with deep pockets can achieve a positive ADHD/ASD diagnosis if they want one.

      Both of these are a problem, but Streeting decided to divert attention from 1) by conflating 2).

      (Source: spouse dealt with the fall-out from this professionally until recent retirement)

      dramypsyd@ohai.socialD 1 Reply Last reply
      0
      • dramypsyd@ohai.socialD dramypsyd@ohai.social

        What's that you say? A UK study aimed at proving that ADHD and autism are over-diagnosed actually found that we are still under-diagnosing both, and lack access to assessments remains a huge barrier to support? What a shocking and unexpected conclusion!

        https://www.politicsuk.com/p/fonagy-review-rejects-blanket-overdiagnosis

        kierkegaanks@beige.partyK This user is from outside of this forum
        kierkegaanks@beige.partyK This user is from outside of this forum
        kierkegaanks@beige.party
        wrote sidst redigeret af
        #7

        @dramypsyd are the scientologist attacking the whole continent at once?

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        • badgardener@mountains.socialB badgardener@mountains.social

          @dramypsyd

          As ever, Streeting got hold of a genuine issue and conflated it without understanding or nuance:

          1) Neuro divergence is under-diagnosed in the UK, because nobody without serious money can access NHS assessment in a timeframe where it would remotely help.

          2) As the report acknowledges, independent (ie paid-for) assessment varies wildly in quality, and essentially any parent with deep pockets can achieve a positive ADHD/ASD diagnosis if they want one.

          Both of these are a problem, but Streeting decided to divert attention from 1) by conflating 2).

          (Source: spouse dealt with the fall-out from this professionally until recent retirement)

          dramypsyd@ohai.socialD This user is from outside of this forum
          dramypsyd@ohai.socialD This user is from outside of this forum
          dramypsyd@ohai.social
          wrote sidst redigeret af
          #8

          @Badgardener Thank you for sharing this!

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          • dramypsyd@ohai.socialD dramypsyd@ohai.social

            What's that you say? A UK study aimed at proving that ADHD and autism are over-diagnosed actually found that we are still under-diagnosing both, and lack access to assessments remains a huge barrier to support? What a shocking and unexpected conclusion!

            https://www.politicsuk.com/p/fonagy-review-rejects-blanket-overdiagnosis

            lukefromdc@kolektiva.socialL This user is from outside of this forum
            lukefromdc@kolektiva.socialL This user is from outside of this forum
            lukefromdc@kolektiva.social
            wrote sidst redigeret af
            #9

            @dramypsyd I am actually glad that autism short of nonverbal was not recognized while I was growing up. I faced enough shit as it was, and the lack of any legal/medical records that I am autistic (no formal diagnosis) has saved me from a hornet's nest of official discrimination and problems.

            Best would have been if my parents had known but NOT the docs or the schools of that era.

            dramypsyd@ohai.socialD 1 Reply Last reply
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            • lukefromdc@kolektiva.socialL lukefromdc@kolektiva.social

              @dramypsyd I am actually glad that autism short of nonverbal was not recognized while I was growing up. I faced enough shit as it was, and the lack of any legal/medical records that I am autistic (no formal diagnosis) has saved me from a hornet's nest of official discrimination and problems.

              Best would have been if my parents had known but NOT the docs or the schools of that era.

              dramypsyd@ohai.socialD This user is from outside of this forum
              dramypsyd@ohai.socialD This user is from outside of this forum
              dramypsyd@ohai.social
              wrote sidst redigeret af
              #10

              @LukefromDC That is fair too ❤

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              • dramypsyd@ohai.socialD dramypsyd@ohai.social

                What's that you say? A UK study aimed at proving that ADHD and autism are over-diagnosed actually found that we are still under-diagnosing both, and lack access to assessments remains a huge barrier to support? What a shocking and unexpected conclusion!

                https://www.politicsuk.com/p/fonagy-review-rejects-blanket-overdiagnosis

                psaldorn@mastodon.socialP This user is from outside of this forum
                psaldorn@mastodon.socialP This user is from outside of this forum
                psaldorn@mastodon.social
                wrote sidst redigeret af
                #11

                @dramypsyd I'm betting we're the majority really.
                #neurospicy

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                0
                • dramypsyd@ohai.socialD dramypsyd@ohai.social

                  What's that you say? A UK study aimed at proving that ADHD and autism are over-diagnosed actually found that we are still under-diagnosing both, and lack access to assessments remains a huge barrier to support? What a shocking and unexpected conclusion!

                  https://www.politicsuk.com/p/fonagy-review-rejects-blanket-overdiagnosis

                  thebreadmonkey@beige.partyT This user is from outside of this forum
                  thebreadmonkey@beige.partyT This user is from outside of this forum
                  thebreadmonkey@beige.party
                  wrote sidst redigeret af
                  #12

                  @dramypsyd

                  I've got a bit weird about talking about this online since diagnosis; primarily since the big push towards over-diagnosis and the medicalisation of the human condition. But I realise we should probably talk about it for visibility and so we don't feel alone, like I have a bit recently. After 5 years of extremely intrusive tests, and a general sense of 'everyone thinks they're AuDHD nowadays', which I pursued largely because a raft of previous diagnoses didn't really fit, I had a final Dx of definitely 100% no question AuDHD. However, the ongoing public narrative has convinced me that I am a stupid attention-seeking fool. I was offered medication, and despite living my life for nearly 5 decades without it, I thought it might be interesting to try it for focus. It worked but the side effects were unexpected and I immediately thought I was a huge fraud and that this journey I've been on has been some kind of incredibly self-serving nonsense, and that I'm stealing resources from people in actual need. Cue a lot of spiralling. I had a meeting today to talk about it, and was fortunate enough to have a consultant who was brilliant - basically called me a dickhead and pointed out the very very long diagnostic process isn't just guesswork and I didn't 'trick' them into believing I'm something I'm not. Still I'm not convinced. But I realise I'm probably not alone in this. It seems very very cruel to me. The journey I went on was emotionally extremely difficult and stressful. But I'm infinitely grateful to the community on here who have helped me more than I can express. If anyone feels the same or ever wants to talk about it or just shoot the shit and talk about stuff, I am always happy to chat and you're welcome to message me separately. X😊❤️

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                  • dramypsyd@ohai.socialD dramypsyd@ohai.social

                    What's that you say? A UK study aimed at proving that ADHD and autism are over-diagnosed actually found that we are still under-diagnosing both, and lack access to assessments remains a huge barrier to support? What a shocking and unexpected conclusion!

                    https://www.politicsuk.com/p/fonagy-review-rejects-blanket-overdiagnosis

                    dramypsyd@ohai.socialD This user is from outside of this forum
                    dramypsyd@ohai.socialD This user is from outside of this forum
                    dramypsyd@ohai.social
                    wrote sidst redigeret af
                    #13

                    Notification overwhelm! Muting so my notifications don't do that weird glitch thing again. Be kind to each other and to yourself 💜

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                    • dramypsyd@ohai.socialD dramypsyd@ohai.social

                      What's that you say? A UK study aimed at proving that ADHD and autism are over-diagnosed actually found that we are still under-diagnosing both, and lack access to assessments remains a huge barrier to support? What a shocking and unexpected conclusion!

                      https://www.politicsuk.com/p/fonagy-review-rejects-blanket-overdiagnosis

                      J This user is from outside of this forum
                      J This user is from outside of this forum
                      justanotherhamster@social.vivaldi.net
                      wrote sidst redigeret af
                      #14

                      @dramypsyd

                      Reminds me of the Sir Humphrey saying: "Never hold an enquiry unless you know what the result is going to be beforehand." 😀

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                      • tokeriis@helvede.netT tokeriis@helvede.net shared this topic
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