@buffyleigh @FediTips I'm lucky enough to be able to spend a week without seizures sometimes, which is great.

When it happens a lot, well at least that's how I felt, you kinda get used to it. It remains exhausting, physically too even if there are no injuries. But when I haven't had one in a week, it feels worse somehow. Don't know if it's just me, though. Thank you for caring

@FediTips @buffyleigh One of the worst animated emoji for me is the one of a cat's head moving around quite fast, I believe? I think it has quick color changes too (flashy ones are the worst to me, but it depends on everyone), or maybe it's another one. "Glitch" aesthetic (don't know how to name it) is horrible for me, even when not animated

I have autoplay off for everything, but when I open in another tab and it isn't on my instance, it's sometimes animated. Which sometimes caused seizures.

For over a year I was at about 3 to 4 seizures daily, without counting the ones in my sleep.

The two nights recorded back then showed it happened twice the first one, and thrice the second night.

RE: https://social.growyourown.services/@FediTips/116698691571650533

Thank you very much for this post!

I'd just like to add that some kinds of seizures aren't epileptic but still photosensitivity-related.

These are not well known at all, unfortunately. It's dissociative.

I'll try to find and share English ressources on it. So far I can only provide French ones I've checked, but can answer questions

I have both epileptic and non epileptic seizures, with nocturnal epilepsy. Didn't know for the last one before getting sleep exam, tho

#Epilepsy #Dissociation